Tips when talking to people with Asperger’s Syndrome
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“Like all people with lived experience of ASD1, I have insights that can assist neurotypical people seeking to understand how we see the world and how we can be better engaged. This is important so we can participate more equitably, which is what being part of a Church is all about,” says Gubbi Gubbi descendent and Equitable Participation Working Group member, Tom Hammer
Upon returning home from a large barbeque gathering one evening, my mum asked, “Hey, Tom! Who was at the barbeque?”
“Sam,” I replied, telling her the name of the person who turned the sausages and steaks at the grill.
It’s easy for people like me to misunderstand what is being asked.
At a young age I was diagnosed with Asperger’s Syndrome; what’s recognised as a form of Autism that is low in support needs.
I’m currently working in an internship for neurodiversity and access in our Diocese as part of the Equitable Participation Working Group, along with The Rev’d Ann Edwards from St Mark’s, The Gap and Peter Branjerdporn from the Justice Unit.
We are aiming to create educational resources on neurodivergent conditions, including, but not limited to, Autism Spectrum Disorder and Attention-deficit/hyperactivity disorder (ADHD). The resources will be accessible to people in our Church community who live with neurodivergent conditions, have loved ones who are neurodivergent or who minister to people who are neurodivergent.
While growing up with Asperger’s, I’ve reflected on my lived experience, so this brief article is an informal piece offering a few practical suggestions and tips.
Tips and advice when talking to people with Autism Spectrum Disorder Level 1 or ASD 1 (Asperger’s Syndrome)
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Understanding that eye contact is different
Conversation between neurotypical people usually involves eye contact (observation of the century, I know). This signals to neurotypical people interest, confidence, honesty and that there’s a mutual respect between each party.
For people with ASD, eye contact can be a difficult thing to maintain, so when we’re not giving eye contact, please understand that it’s not a sign that we’re disinterested, lacking in respect or dishonest.
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Asking what name the person wants to be called
Sometimes we find it hard to maintain our own individual identity and being called ‘Mate’, ‘Boss’ and ‘Deary’ or a nickname (even by friends) that we dislike makes things hard. These names, while intending to be friendly, can imply a closeness in a relationship that doesn’t mirror our reality. And, in the case of ‘Deary’, it can be outright confusing.
Asking neurodivergent people what name they prefer and if they’re comfortable with being called ‘Mate’ or ‘Boss’ or a given nickname can go a long way to ensuring meaningful interactions.
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Understanding that non-verbal cues can often be missed
Similar to eye contact, non-verbal cues are an integral part of neurotypical communication and general social interaction. These cues often communicate an implicit meaning through subtle facial expressions or bodily gestures, such as when people are sad (e.g. corners of the mouth being drawn down or eyes being lowered) or running short of time (e.g. looking at a watch). These can be very hard to read for people with ASD1 (Autism Spectrum Disorder Level 1).
Using exaggerated expressions or being outright explicit in what you mean can be very helpful in communication.
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Being explicit and specific with your invitations and requests
Imagine four people sitting together at a table. One of them lives with ASD1 and the other three are neurotypical. Two of the neurotypical people are discussing a board games night that they have decided in that conversation to plan. The remaining neurotypical person recognises that due to the pair talking about the event in such an open matter that there is an implied invitation for that person to join in the forthcoming event. However, the neurodivergent person may not pick up on this implicit invitation and may even feel that it’s inappropriate to intrude on their business.
Giving people with ASD1 an explicit invitation might help a lot. I guess I wanted to bring this point up because while a lot of ASD1 people hate the feeling of loneliness, it’s something we end up feeling at home with.
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Asking follow-up questions
The barbeque anecdote given above shows how important it is to phrase your questions when talking to neurodivergent people. It’s also important to ask follow-up questions, such as when clarifying responses to your initial question.
For example, asking questions like ‘What do you mean by that?’ or ‘Can you expand upon that, please?’ can go a long way to better understanding what neurodivergent people mean when they respond to you.
Now, I want to just reiterate that I don’t claim to be a medical expert on Autism Spectrum Disorder or the neurodivergent spectrum. I am also learning. However, like all people with lived experience of ASD1, I have insights that can assist neurotypical people seeking to understand how we see the world and how we can be better engaged. This is important so we can participate more equitably, which is what being part of a Church is all about.
Roscoe Library Manager’s note 27/08/2021: Autistic Thinking in the Life of the Church by Stewart Rapley is due for publication by SCM Press on 31 August. The Roscoe Library has a copy on pre-order. Here’s the publisher’s description: “Autism was only identified and recognised relatively recently, but even so one might have expected the church to have moved further in its thinking about how autistic thinking can contribute to the life of the church. At a time when churches exhibit a heightened awareness of ‘inclusion’ and recognition of difference in all manner of ways, it is startling how little attention is given to those who have autism. Drawn from extensive research amongst autistic worshippers, Autistic Thinking in the Life of the Church develops and explores a model in which churches can strengthen and retain the cognitive engagement of those worshippers in their congregations who are on the autistic spectrum.”
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